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Online support, community stories, financial assistance
AKCEA CONNECT: Support for the Ionis Drug Tegsedi
AKCEA CONNECT is here to assist and help you feel more empowered in your healthcare. Our support program is staffed by a team of dedicated Nurse Case Managers who understand the challenges that come along with living with a rare disease. Here are just a few ways we can help:
Knowledge:
Your Nurse Case Manager can provide educational materials for you and your healthcare team to help with day-to-day disease management.
Access:
Your Nurse Case Manager can assess your insurance coverage, answer funding questions, and research assistance options.
Empowerment:
Your Nurse Case Manager can help you connect with people and resources in the rare disease community so that you don’t feel isolated or alone.
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